Our resource section has some useful addresses and contacts, should you want to find out answers to questions, find a support group or a specialist nurse in your area. Click on one of the headings in the list below to go directly to the type of link you are looking for.
Useful Links
Partnerships
RGK (www.rgklife.com)
RGK manufacturers complete custom made-to-measure wheelchairs. Ideal for daily or sports use choose browse their website for the latest range of chair and book in for a free consultation with a mobility adviser using the contact us button.Back Up (www.backuptrust.org.uk)
Arranges outdoor sports and activities for those paralysed through spinal cord injury.Cauda Equina Syndrome UK Charity (www.caudaequina.org)
Our intention is to help, meet and share information about CES. To create support groups around the UK so all sufferers will have access to a support network to support careers to CES patients and educate people about Cauda Equina Syndrome.The Spinal Injuries Association (www.spinal.co.uk/ )
The Spinal Injuries Association (SIA) is the leading national charity for spinal cord injured people. They are a user led organisation; their elected Trustees are all spinal cord injured and are voted for by the spinal cord injured membership. They offer support and assistance from the time of injury and for the rest of a paralysed person’s life as well as support for families.NHS (http://www.nhsdirect.nhs.uk)
Fittleworth provide NHS services and are privilidged to deliver Stoma, Continence and Wound Care appliances to thousands of customers.Cyclone Technologies (www.cyclonemobility.com)
Cyclone Technologies is a leading UK manufacturer of Custom Wheelchairs, providers of functional Electrical Stimulation Products, Spinal Injury Therapy Equipment, The ReWalk and more.
Professional Bodies
Association of Coloproctology (www.acpgbi.org.uk)
The Association of Coloproctology of Great Britain and Ireland is a professional society representing more than 1000 Colon and Rectal specialists dedicated to advancing and promoting the science and practice of the treatment of patients with diseases and disorders affecting the colon, rectum, and anus. It is also known as The Association of Bowel Specialists.
Association for Continence Advice (www.aca.uk.com)
The ACA is a membership organisation for health and social care professionals concerned with the progression of care for continence.
British Society of Gastroenterology (www.bsg.org.uk)
The British Society of Gastroenterology (BSG) exists to maintain and promote high standards of patient care in gastroenterology and to enhance the capacity of its members to discover and apply new knowledge to benefit patients with digestive disorders. Our members include physicians, surgeons, pathologists, radiologists, scientists, nurses. dietitians, and others.
Multiple Sclerosis Specialist Nurse Association (www.ukmssna.org.uk)
The United Kingdom Multiple Sclerosis Specialist Nurse Association (UKMSSNA) is the professional membership organisation for Clinical Nurse Specialists in multiple sclerosis and for other health and social care professionals with an interest in the care of people with MS in the United Kingdom.
Hospitals
Calderdale Royal Hospital (www.cht.nhs.uk/)
Stoma Clinic, appointment only: 01422 222724
Paula Pickersgill, Lisa Hall
Tuesdays 9am to 12pm, Wednesdays 1pm to 4pmSt Marks Hospital (www.stmarkshospital.org.uk)
Associations
The Colostomy Association (www.colostomyassociation.org.uk)
2 London Court, East Street, Reading RG1 4QL. Tel: 0118 939 1537, 24/7 Helpline: 0800 328 4257
The CA provides a much needed, dedicated service of support and care for Colostomates and their Carers, building on the excellent foundations laid down by the previous association – The BCA.The Ileostomy Association (www.iasupport.org)
IA National Office, Peverill House, 1-5 Mill Road, Ballyclare, Co.Antrim BT39 9DR. Tel: 0800 018 4724 (free) or 028 9334 4043
The IA is a UK registered charity whose primary aim is to help people who have to undergo surgery which involves the removal of their colon (colectomy) and the creation of either an ileostomy or an ileo-anal pouch.The Urostomy Association (www.uagbi.org)
18 Foxglove Avenue, Uttoxeter, Staffs ST14 8UN. Tel: 08452 412 159
The UA aims to help people who are about to undergo or have undergone surgery resulting in diversion of the urinary stream.National Association for Colitis and Crohn's Disease (NACC) (www.nacc.org.uk)
4 Beaumont House, Sutton Road, St Albans, Herts AL1 5HH. Tel: 08450130 233 or +44(0)1727 844 296. info@nacc.org.uk
For sufferers of ulcerative colitis or Crohn’s disease.The Bladder & Bowel Foundation (B&BF) (www.bladderandbowelfoundation.org)
SATRA Innovation Park, Rockingham Road, Kettering, Northants, NN16 9JH. Tel: 01536 533255. Helpline: Tel: 0845 345 0165, General Enquiries: Tel: 01536 533255, email: info@bladderandbowelfoundation.org
Registered Charity Number 1085095. The Bladder and Bowel Foundation (B&BF) is the UK’s largest advocacy charity providing information and support for all types of bladder and bowel related problems, for patients, their families, carers and healthcare professionals.Spinal Injuries Scotland (www.sisonline.org)
Festival Business Centre, 150 Brand Street, Govan, Glasgow, G51 1DH. Tel: 0800 0132 305. info@sisonline.org
Spinal Injuries Scotland is the national voluntary organisation concerned with new and long-term spinal cord injured people, their relatives and friends, along with those involved in the management, care and rehabilitation of the injury.Apparelyzed - Spinal Cord Injury Support (www.apparelyzed.com)
Spinal Cord Injury peer support for patients, carers and those affected by paralysis following a spinal injury.
Other Useful Links
British Hernia Centre (www.hernia.org/stoma.html)
A comprehensive description of the various types of HERNIA and the different techniques
of hernia repair surgery available around the world today.Comfizz (www.stomawear.uk.com)
Comfizz underwear for Stoma and Hernia sufferers, suitable for Ostomates with
an Ileostomy, Colostomy, Urostomy and post surgery, Hernia Sufferers.Contact-a-Family (www.cafamily.org.uk)
Contact a Family is a UK charity for families with disabled children. We offer information
on specific conditions and rare disorders.Gay Ostomates Organisation (www.gayostomates.org)
A website for Gay Ostomists in the UK and around the world with news, letters, events, health issues and information.
British Toilet Association (www.britloos.co.uk)
Their mission is to represent the interest and aspirations of ‘away from home’ toilet providers, suppliers and users of all types and to act as the catalyst for change in the pursuit of standards of excellence in all areas of public toilet provision and management.
Polyposis Registry (www.polyposisregistry.org.uk)
RADAR - the disability network (www.radar.org.uk)
Disability Rights UK – formerly known as The Royal Association for Disability Rights (Radar) are now Disability Rights UK – formed through a merger of Disability Alliance, Radar and National Centre for Independent Living on 1st January 2012. They aim to be the largest national pan-disability organisation led by disabled people.
UK Prostate Link (www.prostate-link.org.uk)
High quality information for Prostate cancer
Vanilla Blush (www.vblush.com)
High quality underwear, not just upholding your figure but upholding your confidence
Little Gumnut (www.littlegumnut.co.uk)
Fun, comfortable and re-usable, eco-friendly, luxury bespoke clothing and products for mother, baby and child.
